Monday, January 4, 2010

BOB'S LEUKEMIA IS IN REMISSION!!!

Family and Friends,

I just wanted to let you know that we received news from Bob's doctor this morning that his Leukemia is officially in full remission. Thank you to everyone for your kind thoughts and prayers during this ordeal, it has really meant a lot. He has a long road ahead wtih regard to rehabilitation and physical therapy, but it's all downhill. I can't think of a better way to start the new year!

Thank you again for keeping Bob in your thoughts and prayers- it has paid off!!

Love and thanks,
Michele

Update from 1/3 by Bob

Sorry for not posting in a while. Life has been crazy with my son on Christmas Break. Well, I was supposed to start my rehab program last week, but had to push it back to starting tomorrow. There were a couple of reasons:
1-My feet were killing me and I couldn't do pushups without being in tremendous pain. I spent most of the week walking, doing toe raises, self massage on my feet, and just plain moving my toes as much as possible. I had been having trouble with the middle three toes on both feet since I got out of the hospital. I had reduced feeling and they hurt. The pushups were brutal. After talking to Michele, I think the reason is how I was positioned in the bed. Keep in mind I was in a coma for three weeks and couldn't move for a couple of weeks after that. Well, my feet would end up just wedged in the end of the bed. Anyway, my feet are feeling much better.
2-I had my bone marrow biopsy on last Monday. My hip was killing me for the majority of the week. For those who don't know what a bone marrow biopsy is they basically stick a really big needle (16 gauge into your hip and then scrape around until they get enough marrow to perform a sample. It really sucks.
3-I have had my son almost everyday for the past two weeks. I wouldn't trade that time for anything in the world and we had a great time. He is very understanding that Dad needs to stop and rest. But, even with the help of Michele and my parents, Christopher still wore me out pretty good. But, we had an absolute blast. I think we both needed all that time together. It had to be real hard on him when I was in the hospital. Especially when I was in a coma. But, he was mature well beyond his six years. He seemed to know all along everything was going to be okay.

I get the results from my bone marrow biopsy tomorrow. I'm really nervous. Everything points to the results being I am in remission from my blood work. But, I am still scared as hell. Not sure I will be able to sleep tonight. I'll let you know the results tomorrow.

Thanks,
Bob

Tuesday, December 29, 2009

Monday Dec 28, the first day of training - by Bob

I had my final bone marrow biopsy this morning. It hurt like heck, but I am glad it's done. I get the results next Monday at 8:30. I spent the rest of today with Chris playing Wii Nerf and running around. We had a good day overall. We are going go to sleep over at Grandma and Pop's house tomorrow night. He is all excited.I did my first "workout" on my way back to being healthy again.I walked for 20 minutes at Walmart. I need to walk for 20, so I figured I would see if there were any post Christmas specials that caught my eye. I left with a machette, some underwear for me, and wife beaters for Chris. I'll try and get my 20 minute walk in everyday and I'll increase it 5 minutes per week over the next 4 weeks.Michele and I then did our lengthy strength training session of:Pushups: 1x5Body weight squats: 1x5I'll do this Monday thru Saturday and increase a rep each day. The next week the reps stay the same for the days but I add a set per week for four weeks. Thanks to Alwyn for sharing his rehab program with me. The pushups kicked my ass (as hard as that is for me to admit).

Thanks,
Bob

Wednesday, December 23, 2009

The Day Before the Day Before Christmas - by Bob

Wednesday 12/23
I went grocery shopping for the first time in 7 months last night. It probably seems pretty small to all of you, but it was a big step for me. I am starting to feel stronger everyday. Today, I actually did a bunch of work around the house getting ready for Christmas. I'm a little tired, but overall I'm good. I pick up Chris in 2 hours and then we are going to Blockbuster to pick up some DVDs. Tonight we are just going to hang around the house. Tomorrow we have: breakfast at Cracker Barrell, going to see Alvin and the Chipmonks the Squequel, going to Michele's parents house, going to church, going back to Michele's parents for dinner, and then to my parents house for desert. I'll try and get an update in, but it might not ne until after Christmas.I hope everyone has a Merry Christmas and a very Happy Holiday Season

Bob

Tuesday, December 22, 2009

Blogs by Bob and a funny photo for Christmas


Thought you might like to see a funny photo of Bob for once! This is what happens when you buy a six year old a NERF gun.

Here's Bob's logs from the past few days:

Monday 12/21
Spent the day with Christopher doing guy stuff. We wrestelled, shot at stuff, and ate well. Overall, I am feeling better. No real working out as I was spent after running around with a 6 year old for two days. I do have a funny story. I snuck out and went to General Practitioner today as I was long over due to my yearly physical. Mostly I just wanted to touch base and ensure he had received my records from my Oncologist so that we were ready to go next year. They wouldn't even schedule the appointment until they had received my records after I explained to the nurse what I had been through weeks ago. So, I know the Doc has my records. He is a great guy. But, he walks in and asks how has your health been? Are you f'ing kidding me??? I had to get you these records and he obviously didn't even look at them. I said great for someone who just went thru chemo and he might want to look thru my file. It ended up fine, but I was a bit upset at first.

Friday 12/18
Last night my freaking stomach was killing me. I don't know if it was chemo related or my stomach just hurt. I took some of my anti nausea meds and I felt a little better. I slept from 10 last night to 11:15 this morning. Michele was scared as I wasn't answering the phone and she was ready to send my dad over to check on me. But, I am okay and I was just really tired.I am going to pick up Christopher from school and gthen we'll workout together. Yesterday we did some push ups, sit ups, mountain climbers, racing, and wrestling. He kicked my butt on the mountain climbers which he does all the time in karate class. He is all excited as after the new year he is going to sign up for weapons class at his karate school. As if me getting punched and kicked wasn't enough. Not much planned for the weekend. But, I'll update the log on Saturday or Sunday.

Love and Thanks,
Michele & Bob

Friday, December 18, 2009

"Bob Youngs and the Restless" an article by Glenn Buechlein


“We should give as we would receive, cheerfully, quickly, and without hesitation; for there is no grace in a benefit that sticks to the fingers.” —Seneca

I became acquainted with Bob Youngs well over a decade ago when the internet and lifting forums were still in their infancy. Like many aspiring lifters, Bob served as my guide when I was somewhat lost in the dark, weightlifting wilderness. He was my Virgil. In the Divine Comedy, Virgil escorts Dante on his pilgrimage through hell and purgatory. Bob accompanied me on my trip into powerlifting’s dark side, everything Westside Barbell. I only had the pleasure of meeting Bob in person a few times, but he always served as a steady source of knowledge whenever I sought it. Whether it was in the flesh or by way of the computer, Bob reminded me of a big ole Teddy bear, soft spoken, reserved, and gentle. It seems as though a reassuring smile was constantly etched on his massive mug.

Beginning in the mid to late 1990s, I picked Bob’s brain on anything to do with Westside Barbell. I was restless for knowledge and relentless in its pursuit. The master I sought wasn’t easily accessed, so Bob acted as a gatekeeper. He allowed hundreds if not thousands of lifters to gain a glimpse behind the curtain to see the great Oz. What was once mysterious and opaque was no more. Bob entertained each and every one of my queries, graciously sharing information regarding innovative lifts, percentages, technique, and programming. Thanks to Bob I became well versed in max efforts movements, dynamic day, and GPP. I became like a missionary myself, spreading the word and philosophy of this new program I had discovered. Quiet education.

I always possessed an inner thirst to know how I stacked up against the best of the best, and Bob again served as my source. I bombarded him with weekly inquiries regarding how much the top guns at Westside Barbell were hoisting on various lifts. I anxiously awaited Bob’s email replies. I had the inside scoop on how much Kenny Patterson floor pressed, George Halbert’s close grip record, and Chuck’s training weights on speed day. This was like heaven because it provided me with goals or benchmarks to shoot for. Plus, I knew the information was accurate, not embellished. Quiet motivation.

I generally shared all my workouts and training weights with Bob as I prepared for an upcoming bench meet. He would offer insight, but he never told me exactly what to do. He allowed me to learn from my mistakes. Instinctively, he knew that I alone had to discover my own personal style. I consistently underestimated my ability, and Bob would prop me up where he knew I should be. I was afraid of failure and was trying to be too safe. Bob’s experience allowed him to suggest my opener and what I should ultimately shoot for in the meet. More often than not, he was right. Quiet inspiration.

“Yesterday is history. Tomorrow is a mystery. And today? Today is a gift. That’s why we call it the present.” —Babatunde Olatunji

This past summer I became reacquainted with Bob when I clicked on a blog detailing his diagnosis and ongoing struggle with leukemia. I awaited each update by his girlfriend in the same nervous fashion that I used to when awaiting Bob’s replies to my now seemingly insignificant questions about lifting. There was lots of pacing, fidgeting at my desk, and chomping at my fingernails.

This past summer I took a six-hour essay test so I could qualify and become a licensed school administrator. The scores wouldn’t be available for a month after the test. I spent a week obsessing and worrying about not passing and the embarrassment that would ensue. While I was sweating this relatively small life event that turned out be nothing, Bob was fighting for his life.
This past summer I dealt with an aching knee that caused me much discomfort, so much discomfort that I often had to spend time contemplating how to devise my workout around the pain. While I was worrying about a workout, Bob was fighting for his life.
This past summer I routinely took my four-year-old daughter to the park and then for some ice cream afterwards. Sometimes we worried about what park to go to because some didn’t have shade trees and we might get hot. While I worried about what park to go to with my little one, Bob was fighting for his life.

Bob continues to be my guide. He taught me many things this past summer. I now have an even deeper understanding of the struggles someone with cancer goes through. Education loud and clear. I now know that it’s easy to complain, but I remember just how good my life is and that I shouldn’t take it for granted. Motivation loud and clear. Lifters take pride in being hardcore. I now know what hardcore really is by reading about Bob’s daily challenges and how he takes them on with fortitude and perseverance. Inspiration loud and clear.

“Life is what happens to you while you’re busy making other plans.”—Lennon
----------------------------------------------------------------------------------------

Glenn “Apollo” Buechlein is a teacher in Indiana with a 700-lb plus bench press at 242 lbs. Best known as “Power B,” Glenn’s gym is in Washington, Indiana. His gym is perfect—steel, chalk, dogs, and pure mayhem.

(Reprinted with permission by www.elitefts.com) Elite Fitness Systems strives to be a recognized leader in the strength training industry by providing the highest quality strength training products and services while providing the highest level of customer service in the industry. For the best training equipment, information, and accessories, visit us at www.EliteFTS.com.

Wednesday, December 16, 2009

Pain Management Doctor's Visit


Family and Friends,

Bob was finally able to go to his old pain management doctor now that all the chemotherapy is over with. He will be switching from the dilaudid and fentanyl patches (which he was able to get off last month) and will be now taking Nucynta, Soma, Xodol and Lidocane patches. Bob has used this pain management doctor in the past and is very happy to make the switch so that he can eventually be able to get in shape soon.

Please continue to keep him in your thoughts and prayers and happy holidays!

Love and Thanks,
Michele

Tuesday, December 15, 2009

Tuesday December 15th- from Bob

Tuesday 12/15
Well, I had planned on starting to do a little bike today, but my body still isn't ready. I'm hoping to get on the bike next Monday. I still get winded going up the stairs and my heart rate and blood pressure go through the roof. So, I am going to do some Wii fit stuff tonight with Michele. It isn't much, but I need to start somewhere.
Here are the issues I am having:
1-Resting heart rate is around 100. Need to get this down.
2-Blood pressure is good. Usually 120-125 over 75-80. The problem is the slightest bit of movement shoots it up. Basically I'm in terrible shape.
3-I am very weak. I need to start getting in some resistance training. I will most likely do that next week as well.
4-I still have some areas in my quads that don't have full feeling back. I need to start hitting those areas with the foam roller.
5-I have become more inflexible. I need to get some mobility and flexibilty work going in the near future as well.
6-My diet needs a little cleaning up, but overall it has not been too bad.

Thanks,
Bob

Monday, December 14, 2009

The weekend and today - from Bob

Weekend of 12/12 & 12/13
It was a great weekend. Christopher slept over on Saturday night. Life felt normal again for a little while. Michele and I spent most of the afternoon finishing up Christmas shopping and buying my Mom a birthday present. I was really tired afterwards. The smallest bit of walking still wears me out. I'm going to start on the bike tomorrow and doing some light resistance training with thera bands. I'll outline my needs and goals tomorrow. After taking a couple of hour break, we picked up Chris and then headed to the Christmas light show with Michele's family. They had a small fair and we played some games, did some sand art, and he ate some cotton candy. The light show was okay, but really loud. My son doesn't like loud. He did okay and we made it thru most of the show before it was time to head out. On Sunday we woke up and Michele made us breakfast of pancakes and bacon. Chris LOVES bacon. We then watched some Ben 10. In the afternoon we went to my parents house to celebrate my Mom's birthday. Chris, my Dad, and I watched some football. It was a great weekend.

Monday 12/14
Had my Oncologist this morning at 8. I didn't get a copy of my blood work, but everything was improved. I do know my platelets were up to 44,000. So, hopefully no more transfusions for me. I go back again on Thursday and should get my Picc line out then. I do have to have my next bone marrow aspiration sometime next week. This should confirm that I am cancer free and can get back to leading a normal life after I get back in shape.I'm going to spend the rest of the day laying around reading and watching TV. I'll pick Chris up after school and then just relax after I drop him off.

Thanks,
Bob

Friday, December 11, 2009

More from Bob 12/9, 12/10, 12/11

12/9-
Another lazy day of resting. We did have family dinner and that was fun. Other than that I pretty much just watched the idiot box.

12/10-
More blood work:
WBC-3.5
Gran: 52.4
RBC: 3.00
HGB: 8.8
PLT: 16,000

Everything went up except my platelets. So, to be on the safe side my oncologist had me get a unit of platelets transfused. This took up most of my day waiting for them to arrive and then getting the infusion. Luckily I have nothing to do, so it's no biggie. When I was done I went home, had a snack, and then took a nap.

12/11-
Again not much going on. I'm going to pick up Christopher from school and then go to my parents house. I'm sure we'll end up watching iCarly and Scooby Doo.Tomorrow Michele and I are going to pick up Christopher and he is going to sleep over for the first time in over 6 months. So, it's a big day for all of us. We are going to go with Michele's family to see a laser light Christmas show. It's at the Jupiter Hammer Heads stadium (single A baseball). They also have a bunch of other kids activities. This will also be our first time going out to an event like this. It feels really good to be starting to get life headed back to normal.

Bob

Wednesday, December 9, 2009

From Bob 12/6, 12/7, 12/8

12/6, 12/7, 12/8
I'm sure you are getting sick of me telling you I feel like crap and I'm tired. So, I won't. I'm going to show you my blood work. Basically chemotherapy is poison and it "re-starts" your bodies production of healthy blood. The problem is there is a lull until the re-start happens. This is a time where I am very immuno compromised and have little energy. Here are the normal ranges for a healthy persons blood work:

White Blood Cells (WBC): 4.1-10.9
Granulocytes (Gran): 37.0%-92.0%
Red Blood Cell (RBC): 4.20-6.30
Hemoglobin (HGB): 12.0-18.0
Platelet (PLT): 140-440

My Blood work on 12/7:
WBC: 1.3
Gran: 8.7%
RBC: 2.72
HGB: 8.0
PLT: 9.0

On this day I had to get 2 units of packed red blood and one unit of platelets transfused. So, I spent the day in the hospital getting blood.

Blood work on 12/8:
WBC: 1.0
Gran: 38.9%
RBC: 3.25
HGB: 9.3
PLT: 19.0

My blood work is starting to come around. My Oncologist thinks my body is starting to produce it's own healthy blood slowly now. So, I don't have to go to the doctor tomorrow. I go again on Thursday. I may even get my Picc Line taken out, which I have had for about four months now. I can't wait to get it out. You can Google Picc Line, but it's basically a central line that has three lines sticking out of my arm for IV attachment. I have to shower with my arm wrapped in plastic wrap until I get it out. I'll check in again tomorrow.

Bob

Monday, December 7, 2009

Today and this past weekend....

Family and Friends,

Bob is back in the hospital for the day receiving 2 units of blood and one unit of platelets. He also needed additional nupogen injections because his white count was very low. Here are the counts as of this morning:

WBC- 1.3
RBC- 2.72
Hemoglobin- 8.0
Platelets- 9,000

Bob is in good spirits, but not too happy he has to spend the whole day in the hospital.

Here is Bob's blog from the last few days:

Friday 12/4
Still feeling tired. Went to my Oncologist to get my last Neupogen shot. The plateles from yesterday didn't do too much as my count were still very low. So, I needed 1 unit of platelets and one unit of packed red. I again had to wait around for the call from the hospital as I need those both to be irradiated. They got everything in at about 3, so I headed over. I got done about 6:15. I then ran to my parents house as we were taking Christopher to see some Christmas lights. One of the parks in the area puts up a cool light show that you drive thru. They even had special 3D glasses that Christopher thought was the coolest thing ever invented.

Saturday 12/5
I felt okay when I woke up. I got caught up on some laundry and other minor chores. In the afternoon we had to go to Toys'R'Us to get some of Christopher's presents. We also ran to Office Depot and the Post Office. For some reason this wiped me out. When we got home I was tremendously tired. I spent the rest of the day on the couch and went to bed early. Bama rolled over the Gators and Texas lucked into a win. Cograts to all of the Southside Barbell members who put up PRs at the Southern States. Great job!!!

Please continue to keep Bob in your thoughts and prayers.
Love and Thanks,
Michele

Wednesday, December 2, 2009

Bob's blogs from the past few days

Family and friends,

Sorry I haven't written in the past few days. To make up for it, I'm attaching Bob's blog so that you can see exactly how he's feeling. Hope everyone is doing well.

Tuesday 12/1- Overall it has been an uneventful day. I received my Neupogen shot again. They hurt like heck going in. My joints are still killing me. Stairs are the worst for me. I did get outside and meander around a bit. The boredom of laying around is starting to get to me. I watched a couple of movies and read, but I cannot take much more of the captivity. The problem is my energy levels are still very low, so I cannot do much more than sit anyway. Oh well.

Monday 11/30- First of my follow ups with my oncologist this week. I have to go in everyday for Neupogen injectons all week. But, I'll meet with the doctor on Mon, Wed, and Thurs. The Neupogen hurts like hell and make your joints even more sore if possible. I was going to start working out a bit today too, but after my office visit decided to wait until next week. The plan is to monitor my blood all week. My counts usually start to near the bottom around Thursday. So, we're thinking I'll need a blood transfusion on Thursday or Friday. Then, my counts should begin to climb next week and I can start doing some light working out. I'll keep you filled in on my progress through the week.

Sunday 11/29- I had a great weekend. I was still pretty tired all the time, but it was awesome. Chris and I slept over my parents house Saturday as Michele was out of town at a wedding. We watching GI Joe the movie and a bunch of other cartoons, we ate like pigs, and had a burping contest. It was a blast. We hung out Sunday at my parents for most of the day and then went to my aunt and uncle's house for my Thanksgiving dinner. It was just a great weekend. I needed to stop and take a break a couple of times, but overall I was okay.

Please continue to keep Bob in your thoughts and prayers. We are still awaiting the results of that specialized blood test. When Bob goes to see the oncologist we are hoping she'll have the results. So far no news is good news.

Love and thanks,
Michele

Sunday, November 29, 2009

Bob out of hospital, hopefully for good!

Family and friends,
I hope everyone had a great Thanksgiving and long weekend. I'm happy to report that Bob is finally out of the hospital as of 9:30am yesterday morning. He got home, took a shower, and spent the afternoon with his parents. Last night he picked up Christopher and they watched GI Joe and had a sleepover at grandma's house. Both of them really enjoyed themselves.
Today we are going over to Bob's aunt and uncle's house to re-create Thanksgiving dinner for him.

Finally, Bob should get the results of his specialized blood test tomorrow. Keep your fingers crossed and please continue to keep him in your thoughts and prayers.

Love and thanks,
Michele

- Posted using BlogPress from my iPhone

Thursday, November 26, 2009

Happy Thanksgiving

Family and friends,
We are so thankful to have family and friends like all of you. Thank you for all the love and support you have given Bob and I. I have attached a photo of Bob's Thanksgiving surprise from his son. Bob has been extremely tired and sore all day. He doesn't want me to bring him turkey until 7pm since he's still sleeping.

Here's his blog from today:
I was going to put this up last night, but felt like crap and was very tired. I watched the UConn vs LSU basketball game. Then, I got really nauseous. It sucked. I had my forth bag of chemo at 4:00am, so I didn't get much sleep. I was already tired to begin with and now I am exhausted. I'm going to spend the day napping and watching football. I did get my three walks in, but it wasn't easy. My knees were really sore. I'll report on today later.


Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele


- Posted using BlogPress from my iPhone

Wednesday, November 25, 2009

Day 2 of last round of chemo

Family and friends,

Today was a super busy day for me. After work I brought Bob and Christopher McDonalds at the hospital. Did you know a double cheeseburger has 1,150mg of sodium? I'm sure that can't be good for Bob. I read that on the side of the happy meal box. That's scary. Anyway, Bob is sore and tired. He's excited to see what surprise his son has in store for him tomorrow. I'm sleeping at my parents' house tonight in order to help with prep early tomorrow. With Bob and my brother-in-laws family we will be about 25 people. That's alot of turkey!

Here's Bob's blog:
Day 2 went without event. No nausea yet. Not much too good on TV. I am starting to feel more tired than usual. I did do my three laps around the floor again. My joints are still killing me, especially my knees. My son, Christopher, came over for a visit. He made the Honor Roll at school and had a really good report card. I was very proud of him. We played on the computer for a while and thumb wrestled. We finalized our plans for Saturday. We are going to sleep over my parents house. Michele will be out of town at her cousin's wedding. So, I figured I should stay at my parents to make sure I'm doing okay after a week of chemo. We are planning on watching GI Joe the movie. Christopher is VERY excited to see it. Talk to yopu tomorrow.

PS. I'm really looking forward to Sons of Anarchy tonight. It's one of the few TV shows I watch on a weekly basis.

Please continue to keep Bob in your thoughts and prayers and have a Happy Thanksgiving!

Love and thanks,
Michele


- Posted using BlogPress from my iPhone

Tuesday, November 24, 2009

Day 1 of last round of Chemo

Family and friends,
I'm going to let you read from Bob's blog first and then I'll tell you what the doctor said regarding the blood abnormalities...


From Bob's Blog:


Day One of chemo...
I arrived today at the Bethesda Memorial at 9:30. I was in my room by 10:30, not bad by hospital standards. They did the usual panel of blood work. I received my first IV bag of chemo at 2:00pm. I'll get the next one at 2:00am. so, not much sleep tonight. How consolidation chemo works is you get chemo twice on days 1, 3, and 5. You are off on days 2 and 4. If all goes well, I should be released sometime Saturday morning.My Oncologist told me they found some abnormalities in my blood cells while doing their review. She thinks it is due to some of the drugs she has me taking to aid in white blood cell formation. She's not too worried, but she is going to do further testing to verify that he cancer is not back. I should get the results in 3 days. I have gotten semi used to stuff like this and just try and roll with it. But, it's always in the back of your mind that you could be sick again.The chemo doesn't really make me feel worse for a couple of days. I feel fine right now. Well, fine for being on round 5 of chemo. I'm still tired most of the time and my joints are killing me. For exercise I took three walks around the whole floor. I would guess the distance to be 1/8th of a mile. I don't have much stamina right now. I'm hoping to improve that once I get this last round of chemo done.


Michele- Okay, Bob is in good spirits today. Bob's doctor called me yesterday and wanted to fill me in on the blood abnormalities. She first wanted to start off by saying that she was very happy that Bob's counts had recovered so quickly. His hemoglobin was at 11.1, platelets at 244,000 and white cells within normal ranges. The problem was that when they did the initial blood test they found that Bob had 1% blasts in his blood. The definition of "Blasts" is the following:

Blasts: Immature blood cells. Leukemic blasts do not grow and age normally; they proliferate wildly and fail to mature.

Bob's oncologist said first that everyone has blasts in their body, but that most likely Bob's could be due to the fact that because his counts recovered so quickly the blood cells didn't have time to mature, or because of the Nupogen injections this could possibly cause the increase in blast cells. She is sending his blood off for full spectrum testing but that it could take as long as week to get the results back (although she has expedited them). She had originally thought to ask Bob if he wanted to go back home and wait for the results because in the off chance that it comes back positive for the Leukemia (which she does not think is the case) Bob would unfortunately need to have re induction chemo again and it would be time to consider a stem cell transplant. Bob is very positive and knows that this is just an anomaly and wants to continue with his last round of consolidation chemotherapy so that he can finally be done. I cannot blame him. 6 months of this is tiring for me, I cannot even begin to think how hard it must be for Bob.

So now we just sit and wait for the results. Both the doctor, Bob and myself feel that it is not the Leukemia coming back.

Please continue to keep Bob in your thoughts and prayers and I hope everyone has a Happy Thanksgiving.

Love and thanks,
Michele

Monday, November 23, 2009

Bob is back at Elitefts.com and answering questions...


Family and friends,

Bob made his first public apperance yesterday at my neice's 1st birthday party. His white blood counts were high enough that he could fight off infection of 25 germy 2-5 year olds. Everyone was thrilled to see him and alot of people didn't recognize him with hair and long sideburns. (The picture I'm posting does not do him justice).

Bob is back in the hospital this morning for his last round of chemotherapy. He was very anxious to get there just to be over and done with it all. (I can't blame him). 6 months of this fiasco and I'd be anxious to get it over too! Anyway, as most of you know Bob is very active in the powerlifting community and for the last 7 years or so has been a fixture on the Q&A and logs at elitefts.com. Bob is finally strong enough to reintroduce his log. Here is a brief exerpt:

"Hi Everyone!For those who don't know I was diagnosed with leukemia in June of this year. I have been under going chemotherapy for the previous 5 months. During that time there have been some complications. To the point where I was read my last rights and my family was told twice I wouldn't make it through the night. My fiance, Michele, has been keeping a blog from the start of this and it can be found at:Bob Youngs - Cancer Blog The reason I am doing a log now is in an effort to promote the Lift Strong line of clothing Elite Fitness Systems is offering. I am going to chronicle my last week of chemo and then my rehab. I am hoping to bring more awerness to the EFS community."

If you are interested in either reading Bob's blog or asking him a question on the Q&A you can do so by going to http://asp.elitefts.com/qa/training-logs.asp?tid=61&__N=Bob%20Youngs

Bob will be missing Thanksgiving this year because he will be in the hospital but everyone is going to come and visit him and he's expecting an extra special dinner prepared by his son Christopher. Please continue to keep Bob in your thoughts and prayers.

Love and thanks,
Michele

Monday, November 16, 2009

Bob has kicked the cold and is in good spirits...

Family and Friends,

Thankfully Bob has kicked his cold with minimal issues, the ZPac worked! In addition he's been in good spirits and we spent some time with Christopher over the weekend. He and Bob played Star Wars and Bob's voice is coming back. His voice has improved by leaps and bounds and he's letting his hair grow out. I swear I think he gained hair during the chemotherapy!! He's got sideburns that are funny as heck. I'll try to post a photo later. Bob goes back into the hospital for his final round of chemotherapy on Monday November 23rd (during the week of Thanksgiving) and then he's done. He is very anxious to get it all over with and I can't blame him.

Thanks for keeping him in your thoughts and prayers.
Love and thanks,
Michele

Thursday, November 12, 2009

Bob has a cold... and blog reflections

Family and Friends,

Bob got out of the hospital late Tuesday but yesterday started showing signs of coming down with a cold. I was very worried last night because Bob's immune system is so weakened that any little thing can progress very quickly into something large and life threatening. So we went to the doctor this morning and his oncologist prescribed him a ZPac and either Sudafed or Mucinex and said as long as he doesn't get a fever he should be okay. The good thing is that Bob's levels are starting to slowly go up on their own. His hemoglobin this morning was 9.9 and platelets at 29,000 so he won't need any transfusions today. We just have to monitor him closely for any signs of fever, but so far he hasn't had any.

That being said, I'd like to stop for a minute and say something about this blog. I write this blog for all of our family and friends to keep everyone up to date regarding Bob's progress. I know at times I can be a little harsh about what's going on, but because I have an iPhone I have the ability to write from anywhere and usually right as everything is happening. So the majority of my posts are uncensored and mostly stream of conciousness, and I usually don't take time to sit down and reflect before writing them. I know at times I can be hard on both the doctor's and the nurses that are providing care for Bob, but I feel it's my obligation to be thorough because Bob's life is at stake. That being said, I would like to say that for the most part I have been very impressed with the care that Bob has received at Bethesda as well as with his oncologist. She is a good doctor and I would not hesitate to recommend her to anyone. I realize that everyone is human and sometimes things just slip through the cracks, but I am confident that she has Bob's best interests in mind. She has gone out of her way to be there for both Bob and myself throughout this process, and has been patient and has answered all of our questions. I realize that sometimes I should stop and say a few good things in this blog as well and going forward I will do more of this.

Finally, I met with the people from the Leukemia and Lymphoma Society yesterday morning regarding "Woman of the Year" fundraising event for next April that Bob's doctor recommended me for. I have decided that I will participate and try to give back to a cause that has deeply affected Bob's family. I will post more about this at a later date.

Thanks for all the recent emails and phone calls about Bob. I read all the comments posted on this blog as well and even though I may not respond to all of them, they are all very much appreciated. Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele

Wednesday, November 11, 2009

Veteran's Day and Bob out of hospital...

Family and friends,

Bob was released from the hospital around 9:30pm last night. His hemoglobin was 8.5 and platelets at 25,000. These are still pretty low but he will go back to the oncologist Thursday and will more than likely need additional transfusions. Both myself and Christopher have the day off today so we are going to bake cupcakes with grandma and possibly go in the pool and have a cookout with Bob's aunt April and uncle Tom if the weather holds up. Please continue to keep Bob in your thoughts and prayers and have a great Veteran's Day.

Love and thanks,
Michele


- Posted using BlogPress from my iPhone

Tuesday, November 10, 2009

Bob still in hospital... Needs more blood still


Family and friends,

Bob is still in the hospital. He received 2 units of platelets and 2 units of packed red blood cells yesterday. He also received an additional unit of blood this morning. Unfortunately his counts are still low- hemoglobin at 7.2 and platelets at 26,000 so he will remain in the hospital today and get two more units of blood, then they will reassess. I have attached a photo of Bob's foot to give you an idea of peticulae - what happens when you have low platelets. The peticulae itself is not life threatening. We hope Bob will be released from the hospital early tomorrow morning if all goes well. Please continue to keep him in your thoughts and prayers.
Love and thanks,
Michele


-- Posted from my iPhone

Monday, November 9, 2009

Emergency admit to hospital...

Family and Friends,

I am beyond pissed off right now to the point of spitting nails. If you've been following the blog you know that last week I ranted about the fact that no one apparantly except for me feels it necessary about Bob's blood counts. On Friday Bob went to the doctor (and at that point should have gotten two units of blood). Well no one tested his blood counts on Friday because the doctor was moving her office. I was pissed. Fast forward to yesterday... Bob's face was broken out with peticlui (looks like measles). By this morning it had spread all over his body and when he woke up his tounge was twice it's normal size and fill with bloody postules. So needless to say we rush to the doctor, she says his low platelets are causing all of this and that he needs an emergency platelet transfusion. At this point it takes everything that I have to not start yelling because this whole damn thing could have been avoided if someone would have been proactive. So now here we sit, Bob and I at the hospital. It took an hour to get the blood results. His hemoglobin has dropped to 5.8 it's surprising to them he is still concious. Normal is between 12-16. His platelets are at 2. Seriously. They are supposed to be at 150,000-350,000. His white cells are non exisitant which means he has no immune system. I hope everyone can understand how frustrating this is because it all could have been prevented with some proactivity. So they are doing an emergency admittance into the hospital for Bob. I'll be here all day if you need me.
Please keep bob in your thoughts and prayers.
Love and thanks,
Michele


-- Posted from my iPhone

Friday, November 6, 2009

Surgery stitches removed, throat update...


Family and Friends,

Bob went by himself to the ENT surgeon this morning. He said that the doctor told him the wound was healing perfectly and his voice seems to be making progress. The stitches were removed. Time will tell if he needs further surgery or if his vocal cord will repair itself. After that he went to the oncologist. Bob has been getting Nupogen shots to bring up his white blood cell count this week. They are still low and so are his hemoglobin and platlets. I was very disappointed that his oncologist was not more proactive and would just give him 2 units of red blood cells and one unit of platlets. He's going to get to her office Monday morning and probably need 3 units of blood and 2 units of platlets and without being typed or crossed at the hospital he'll be at Bethesda ALL DAY and most likely all day Tuesday. I just don't get why doctors are reactive and not proactive. I'm in no way a doctor, but I can see the trend in Bob's bloodwork. How you could let anyone walk around with 50% of the blood in their body and not be proactive about it is beyond me. What if something happens to Bob over the weekend? I'm just saying...

It's annoying.

So, it looks like Bob doesn't qualify for unemployment benefits because he is unable to look for a job and from what the lady said Bob couldn't work at his last job so he technally wasn't laid off due to a lack of available work. Whatever. It's ridiculous. I'm just glad I got the long term disability straightened out. I'd recommend to anyone getting this insurance if it's available.

Please keep Bob in your thoughts and prayers. He only has ONE MORE ROUND OF CHEMOTHERAPY LEFT!!! (Thanksgiving week)

Lots of Love and Thanks,
Michele

Monday, November 2, 2009

Bob out of hospital, doing well after surgery

Family and Friends,

I hope everyone had a Happy Halloween. As I said in my last post, Bob's surgery went well. That Friday I really noticed a difference in Bob's voice. He was speaking much deeper and not whispering at all. But then Saturday (most likely due to the fact that the swelling went down) Bob was back speaking in a hoarse whisper. He is going back to the ENT surgeon Thursday or Friday this week to have the stitches removed and once it's healed they will begin vocal testing to see the extent of the damage to his vocal cords. I am hoping things will get better with time.

As expected, Bob got out of the hospital on Saturday afternoon. He was in good spirits and insisted that he walk out of the hospital rather than get wheeled out. (He was very stubborn about this). In addition, he also insisted that I get him a costume for Halloween so that he could trick or treat with Christopher, Bob's uncle Tom, and myself. I went out and bought us matching pirate costumes and Bob was a real trooper. He walked his butt off and let me tell you it was hot as heck. Like 85 degrees, so hot that we had to bring poor Christopher home to change out of his polyester costume and into a RedSox t-shirt and shorts. We all had a fanstastic time on Halloween. I will post photos later.

Bob and I went to his oncologist this morning so that he could get a check up and a Nupogen shot. His counts are actually pretty good today and he didn't need any blood. He'll be going back every day this week for more shots and follow up. I also got a call from the Leukemia and Lymphoma Society of Palm Beach wanting me to participate in their Woman of the Year. I have to call them back today. Bob's doctor was the one that nominated me and I was very honored that she'd think of me.

I will keep everyone posted of Bob's progress throughout the week. Please continue to keep him in your thoughts and prayers.

Love and thanks,
Michele