Family and friends,
I hope everyone had a great Thanksgiving and long weekend. I'm happy to report that Bob is finally out of the hospital as of 9:30am yesterday morning. He got home, took a shower, and spent the afternoon with his parents. Last night he picked up Christopher and they watched GI Joe and had a sleepover at grandma's house. Both of them really enjoyed themselves.
Today we are going over to Bob's aunt and uncle's house to re-create Thanksgiving dinner for him.
Finally, Bob should get the results of his specialized blood test tomorrow. Keep your fingers crossed and please continue to keep him in your thoughts and prayers.
Love and thanks,
Michele
- Posted using BlogPress from my iPhone
Sunday, November 29, 2009
Thursday, November 26, 2009
Happy Thanksgiving
Family and friends,
We are so thankful to have family and friends like all of you. Thank you for all the love and support you have given Bob and I. I have attached a photo of Bob's Thanksgiving surprise from his son. Bob has been extremely tired and sore all day. He doesn't want me to bring him turkey until 7pm since he's still sleeping.
Here's his blog from today:
I was going to put this up last night, but felt like crap and was very tired. I watched the UConn vs LSU basketball game. Then, I got really nauseous. It sucked. I had my forth bag of chemo at 4:00am, so I didn't get much sleep. I was already tired to begin with and now I am exhausted. I'm going to spend the day napping and watching football. I did get my three walks in, but it wasn't easy. My knees were really sore. I'll report on today later.
Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele

- Posted using BlogPress from my iPhone
We are so thankful to have family and friends like all of you. Thank you for all the love and support you have given Bob and I. I have attached a photo of Bob's Thanksgiving surprise from his son. Bob has been extremely tired and sore all day. He doesn't want me to bring him turkey until 7pm since he's still sleeping.
Here's his blog from today:
I was going to put this up last night, but felt like crap and was very tired. I watched the UConn vs LSU basketball game. Then, I got really nauseous. It sucked. I had my forth bag of chemo at 4:00am, so I didn't get much sleep. I was already tired to begin with and now I am exhausted. I'm going to spend the day napping and watching football. I did get my three walks in, but it wasn't easy. My knees were really sore. I'll report on today later.
Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele

- Posted using BlogPress from my iPhone
Wednesday, November 25, 2009
Day 2 of last round of chemo
Family and friends,
Today was a super busy day for me. After work I brought Bob and Christopher McDonalds at the hospital. Did you know a double cheeseburger has 1,150mg of sodium? I'm sure that can't be good for Bob. I read that on the side of the happy meal box. That's scary. Anyway, Bob is sore and tired. He's excited to see what surprise his son has in store for him tomorrow. I'm sleeping at my parents' house tonight in order to help with prep early tomorrow. With Bob and my brother-in-laws family we will be about 25 people. That's alot of turkey!
Here's Bob's blog:
Day 2 went without event. No nausea yet. Not much too good on TV. I am starting to feel more tired than usual. I did do my three laps around the floor again. My joints are still killing me, especially my knees. My son, Christopher, came over for a visit. He made the Honor Roll at school and had a really good report card. I was very proud of him. We played on the computer for a while and thumb wrestled. We finalized our plans for Saturday. We are going to sleep over my parents house. Michele will be out of town at her cousin's wedding. So, I figured I should stay at my parents to make sure I'm doing okay after a week of chemo. We are planning on watching GI Joe the movie. Christopher is VERY excited to see it. Talk to yopu tomorrow.
PS. I'm really looking forward to Sons of Anarchy tonight. It's one of the few TV shows I watch on a weekly basis.
Please continue to keep Bob in your thoughts and prayers and have a Happy Thanksgiving!
Love and thanks,
Michele
- Posted using BlogPress from my iPhone
Today was a super busy day for me. After work I brought Bob and Christopher McDonalds at the hospital. Did you know a double cheeseburger has 1,150mg of sodium? I'm sure that can't be good for Bob. I read that on the side of the happy meal box. That's scary. Anyway, Bob is sore and tired. He's excited to see what surprise his son has in store for him tomorrow. I'm sleeping at my parents' house tonight in order to help with prep early tomorrow. With Bob and my brother-in-laws family we will be about 25 people. That's alot of turkey!
Here's Bob's blog:
Day 2 went without event. No nausea yet. Not much too good on TV. I am starting to feel more tired than usual. I did do my three laps around the floor again. My joints are still killing me, especially my knees. My son, Christopher, came over for a visit. He made the Honor Roll at school and had a really good report card. I was very proud of him. We played on the computer for a while and thumb wrestled. We finalized our plans for Saturday. We are going to sleep over my parents house. Michele will be out of town at her cousin's wedding. So, I figured I should stay at my parents to make sure I'm doing okay after a week of chemo. We are planning on watching GI Joe the movie. Christopher is VERY excited to see it. Talk to yopu tomorrow.
PS. I'm really looking forward to Sons of Anarchy tonight. It's one of the few TV shows I watch on a weekly basis.
Please continue to keep Bob in your thoughts and prayers and have a Happy Thanksgiving!
Love and thanks,
Michele
- Posted using BlogPress from my iPhone
Tuesday, November 24, 2009
Day 1 of last round of Chemo
I'm going to let you read from Bob's blog first and then I'll tell you what the doctor said regarding the blood abnormalities...
From Bob's Blog:
Day One of chemo...
I arrived today at the Bethesda Memorial at 9:30. I was in my room by 10:30, not bad by hospital standards. They did the usual panel of blood work. I received my first IV bag of chemo at 2:00pm. I'll get the next one at 2:00am. so, not much sleep tonight. How consolidation chemo works is you get chemo twice on days 1, 3, and 5. You are off on days 2 and 4. If all goes well, I should be released sometime Saturday morning.My Oncologist told me they found some abnormalities in my blood cells while doing their review. She thinks it is due to some of the drugs she has me taking to aid in white blood cell formation. She's not too worried, but she is going to do further testing to verify that he cancer is not back. I should get the results in 3 days. I have gotten semi used to stuff like this and just try and roll with it. But, it's always in the back of your mind that you could be sick again.The chemo doesn't really make me feel worse for a couple of days. I feel fine right now. Well, fine for being on round 5 of chemo. I'm still tired most of the time and my joints are killing me. For exercise I took three walks around the whole floor. I would guess the distance to be 1/8th of a mile. I don't have much stamina right now. I'm hoping to improve that once I get this last round of chemo done.
Michele- Okay, Bob is in good spirits today. Bob's doctor called me yesterday and wanted to fill me in on the blood abnormalities. She first wanted to start off by saying that she was very happy that Bob's counts had recovered so quickly. His hemoglobin was at 11.1, platelets at 244,000 and white cells within normal ranges. The problem was that when they did the initial blood test they found that Bob had 1% blasts in his blood. The definition of "Blasts" is the following:
Blasts: Immature blood cells. Leukemic blasts do not grow and age normally; they proliferate wildly and fail to mature.
Bob's oncologist said first that everyone has blasts in their body, but that most likely Bob's could be due to the fact that because his counts recovered so quickly the blood cells didn't have time to mature, or because of the Nupogen injections this could possibly cause the increase in blast cells. She is sending his blood off for full spectrum testing but that it could take as long as week to get the results back (although she has expedited them). She had originally thought to ask Bob if he wanted to go back home and wait for the results because in the off chance that it comes back positive for the Leukemia (which she does not think is the case) Bob would unfortunately need to have re induction chemo again and it would be time to consider a stem cell transplant. Bob is very positive and knows that this is just an anomaly and wants to continue with his last round of consolidation chemotherapy so that he can finally be done. I cannot blame him. 6 months of this is tiring for me, I cannot even begin to think how hard it must be for Bob.
So now we just sit and wait for the results. Both the doctor, Bob and myself feel that it is not the Leukemia coming back.
Please continue to keep Bob in your thoughts and prayers and I hope everyone has a Happy Thanksgiving.
Love and thanks,
Michele
Monday, November 23, 2009
Bob is back at Elitefts.com and answering questions...
Family and friends,
Bob made his first public apperance yesterday at my neice's 1st birthday party. His white blood counts were high enough that he could fight off infection of 25 germy 2-5 year olds. Everyone was thrilled to see him and alot of people didn't recognize him with hair and long sideburns. (The picture I'm posting does not do him justice).
Bob is back in the hospital this morning for his last round of chemotherapy. He was very anxious to get there just to be over and done with it all. (I can't blame him). 6 months of this fiasco and I'd be anxious to get it over too! Anyway, as most of you know Bob is very active in the powerlifting community and for the last 7 years or so has been a fixture on the Q&A and logs at elitefts.com. Bob is finally strong enough to reintroduce his log. Here is a brief exerpt:
"Hi Everyone!For those who don't know I was diagnosed with leukemia in June of this year. I have been under going chemotherapy for the previous 5 months. During that time there have been some complications. To the point where I was read my last rights and my family was told twice I wouldn't make it through the night. My fiance, Michele, has been keeping a blog from the start of this and it can be found at:Bob Youngs - Cancer Blog The reason I am doing a log now is in an effort to promote the Lift Strong line of clothing Elite Fitness Systems is offering. I am going to chronicle my last week of chemo and then my rehab. I am hoping to bring more awerness to the EFS community."
If you are interested in either reading Bob's blog or asking him a question on the Q&A you can do so by going to http://asp.elitefts.com/qa/training-logs.asp?tid=61&__N=Bob%20Youngs
Bob will be missing Thanksgiving this year because he will be in the hospital but everyone is going to come and visit him and he's expecting an extra special dinner prepared by his son Christopher. Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele
Monday, November 16, 2009
Bob has kicked the cold and is in good spirits...
Family and Friends,
Thankfully Bob has kicked his cold with minimal issues, the ZPac worked! In addition he's been in good spirits and we spent some time with Christopher over the weekend. He and Bob played Star Wars and Bob's voice is coming back. His voice has improved by leaps and bounds and he's letting his hair grow out. I swear I think he gained hair during the chemotherapy!! He's got sideburns that are funny as heck. I'll try to post a photo later. Bob goes back into the hospital for his final round of chemotherapy on Monday November 23rd (during the week of Thanksgiving) and then he's done. He is very anxious to get it all over with and I can't blame him.
Thanks for keeping him in your thoughts and prayers.
Love and thanks,
Michele
Thankfully Bob has kicked his cold with minimal issues, the ZPac worked! In addition he's been in good spirits and we spent some time with Christopher over the weekend. He and Bob played Star Wars and Bob's voice is coming back. His voice has improved by leaps and bounds and he's letting his hair grow out. I swear I think he gained hair during the chemotherapy!! He's got sideburns that are funny as heck. I'll try to post a photo later. Bob goes back into the hospital for his final round of chemotherapy on Monday November 23rd (during the week of Thanksgiving) and then he's done. He is very anxious to get it all over with and I can't blame him.
Thanks for keeping him in your thoughts and prayers.
Love and thanks,
Michele
Thursday, November 12, 2009
Bob has a cold... and blog reflections
Family and Friends,
Bob got out of the hospital late Tuesday but yesterday started showing signs of coming down with a cold. I was very worried last night because Bob's immune system is so weakened that any little thing can progress very quickly into something large and life threatening. So we went to the doctor this morning and his oncologist prescribed him a ZPac and either Sudafed or Mucinex and said as long as he doesn't get a fever he should be okay. The good thing is that Bob's levels are starting to slowly go up on their own. His hemoglobin this morning was 9.9 and platelets at 29,000 so he won't need any transfusions today. We just have to monitor him closely for any signs of fever, but so far he hasn't had any.
That being said, I'd like to stop for a minute and say something about this blog. I write this blog for all of our family and friends to keep everyone up to date regarding Bob's progress. I know at times I can be a little harsh about what's going on, but because I have an iPhone I have the ability to write from anywhere and usually right as everything is happening. So the majority of my posts are uncensored and mostly stream of conciousness, and I usually don't take time to sit down and reflect before writing them. I know at times I can be hard on both the doctor's and the nurses that are providing care for Bob, but I feel it's my obligation to be thorough because Bob's life is at stake. That being said, I would like to say that for the most part I have been very impressed with the care that Bob has received at Bethesda as well as with his oncologist. She is a good doctor and I would not hesitate to recommend her to anyone. I realize that everyone is human and sometimes things just slip through the cracks, but I am confident that she has Bob's best interests in mind. She has gone out of her way to be there for both Bob and myself throughout this process, and has been patient and has answered all of our questions. I realize that sometimes I should stop and say a few good things in this blog as well and going forward I will do more of this.
Finally, I met with the people from the Leukemia and Lymphoma Society yesterday morning regarding "Woman of the Year" fundraising event for next April that Bob's doctor recommended me for. I have decided that I will participate and try to give back to a cause that has deeply affected Bob's family. I will post more about this at a later date.
Thanks for all the recent emails and phone calls about Bob. I read all the comments posted on this blog as well and even though I may not respond to all of them, they are all very much appreciated. Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele
Bob got out of the hospital late Tuesday but yesterday started showing signs of coming down with a cold. I was very worried last night because Bob's immune system is so weakened that any little thing can progress very quickly into something large and life threatening. So we went to the doctor this morning and his oncologist prescribed him a ZPac and either Sudafed or Mucinex and said as long as he doesn't get a fever he should be okay. The good thing is that Bob's levels are starting to slowly go up on their own. His hemoglobin this morning was 9.9 and platelets at 29,000 so he won't need any transfusions today. We just have to monitor him closely for any signs of fever, but so far he hasn't had any.
That being said, I'd like to stop for a minute and say something about this blog. I write this blog for all of our family and friends to keep everyone up to date regarding Bob's progress. I know at times I can be a little harsh about what's going on, but because I have an iPhone I have the ability to write from anywhere and usually right as everything is happening. So the majority of my posts are uncensored and mostly stream of conciousness, and I usually don't take time to sit down and reflect before writing them. I know at times I can be hard on both the doctor's and the nurses that are providing care for Bob, but I feel it's my obligation to be thorough because Bob's life is at stake. That being said, I would like to say that for the most part I have been very impressed with the care that Bob has received at Bethesda as well as with his oncologist. She is a good doctor and I would not hesitate to recommend her to anyone. I realize that everyone is human and sometimes things just slip through the cracks, but I am confident that she has Bob's best interests in mind. She has gone out of her way to be there for both Bob and myself throughout this process, and has been patient and has answered all of our questions. I realize that sometimes I should stop and say a few good things in this blog as well and going forward I will do more of this.
Finally, I met with the people from the Leukemia and Lymphoma Society yesterday morning regarding "Woman of the Year" fundraising event for next April that Bob's doctor recommended me for. I have decided that I will participate and try to give back to a cause that has deeply affected Bob's family. I will post more about this at a later date.
Thanks for all the recent emails and phone calls about Bob. I read all the comments posted on this blog as well and even though I may not respond to all of them, they are all very much appreciated. Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele
Wednesday, November 11, 2009
Veteran's Day and Bob out of hospital...
Family and friends,
Bob was released from the hospital around 9:30pm last night. His hemoglobin was 8.5 and platelets at 25,000. These are still pretty low but he will go back to the oncologist Thursday and will more than likely need additional transfusions. Both myself and Christopher have the day off today so we are going to bake cupcakes with grandma and possibly go in the pool and have a cookout with Bob's aunt April and uncle Tom if the weather holds up. Please continue to keep Bob in your thoughts and prayers and have a great Veteran's Day.
Love and thanks,
Michele
- Posted using BlogPress from my iPhone
Bob was released from the hospital around 9:30pm last night. His hemoglobin was 8.5 and platelets at 25,000. These are still pretty low but he will go back to the oncologist Thursday and will more than likely need additional transfusions. Both myself and Christopher have the day off today so we are going to bake cupcakes with grandma and possibly go in the pool and have a cookout with Bob's aunt April and uncle Tom if the weather holds up. Please continue to keep Bob in your thoughts and prayers and have a great Veteran's Day.
Love and thanks,
Michele
- Posted using BlogPress from my iPhone
Tuesday, November 10, 2009
Bob still in hospital... Needs more blood still
Family and friends,
Bob is still in the hospital. He received 2 units of platelets and 2 units of packed red blood cells yesterday. He also received an additional unit of blood this morning. Unfortunately his counts are still low- hemoglobin at 7.2 and platelets at 26,000 so he will remain in the hospital today and get two more units of blood, then they will reassess. I have attached a photo of Bob's foot to give you an idea of peticulae - what happens when you have low platelets. The peticulae itself is not life threatening. We hope Bob will be released from the hospital early tomorrow morning if all goes well. Please continue to keep him in your thoughts and prayers.
Love and thanks,
Michele
-- Posted from my iPhone
Bob is still in the hospital. He received 2 units of platelets and 2 units of packed red blood cells yesterday. He also received an additional unit of blood this morning. Unfortunately his counts are still low- hemoglobin at 7.2 and platelets at 26,000 so he will remain in the hospital today and get two more units of blood, then they will reassess. I have attached a photo of Bob's foot to give you an idea of peticulae - what happens when you have low platelets. The peticulae itself is not life threatening. We hope Bob will be released from the hospital early tomorrow morning if all goes well. Please continue to keep him in your thoughts and prayers.
Love and thanks,
Michele
-- Posted from my iPhone
Monday, November 9, 2009
Emergency admit to hospital...
Family and Friends,
I am beyond pissed off right now to the point of spitting nails. If you've been following the blog you know that last week I ranted about the fact that no one apparantly except for me feels it necessary about Bob's blood counts. On Friday Bob went to the doctor (and at that point should have gotten two units of blood). Well no one tested his blood counts on Friday because the doctor was moving her office. I was pissed. Fast forward to yesterday... Bob's face was broken out with peticlui (looks like measles). By this morning it had spread all over his body and when he woke up his tounge was twice it's normal size and fill with bloody postules. So needless to say we rush to the doctor, she says his low platelets are causing all of this and that he needs an emergency platelet transfusion. At this point it takes everything that I have to not start yelling because this whole damn thing could have been avoided if someone would have been proactive. So now here we sit, Bob and I at the hospital. It took an hour to get the blood results. His hemoglobin has dropped to 5.8 it's surprising to them he is still concious. Normal is between 12-16. His platelets are at 2. Seriously. They are supposed to be at 150,000-350,000. His white cells are non exisitant which means he has no immune system. I hope everyone can understand how frustrating this is because it all could have been prevented with some proactivity. So they are doing an emergency admittance into the hospital for Bob. I'll be here all day if you need me.
Please keep bob in your thoughts and prayers.
Love and thanks,
Michele
-- Posted from my iPhone
I am beyond pissed off right now to the point of spitting nails. If you've been following the blog you know that last week I ranted about the fact that no one apparantly except for me feels it necessary about Bob's blood counts. On Friday Bob went to the doctor (and at that point should have gotten two units of blood). Well no one tested his blood counts on Friday because the doctor was moving her office. I was pissed. Fast forward to yesterday... Bob's face was broken out with peticlui (looks like measles). By this morning it had spread all over his body and when he woke up his tounge was twice it's normal size and fill with bloody postules. So needless to say we rush to the doctor, she says his low platelets are causing all of this and that he needs an emergency platelet transfusion. At this point it takes everything that I have to not start yelling because this whole damn thing could have been avoided if someone would have been proactive. So now here we sit, Bob and I at the hospital. It took an hour to get the blood results. His hemoglobin has dropped to 5.8 it's surprising to them he is still concious. Normal is between 12-16. His platelets are at 2. Seriously. They are supposed to be at 150,000-350,000. His white cells are non exisitant which means he has no immune system. I hope everyone can understand how frustrating this is because it all could have been prevented with some proactivity. So they are doing an emergency admittance into the hospital for Bob. I'll be here all day if you need me.
Please keep bob in your thoughts and prayers.
Love and thanks,
Michele
-- Posted from my iPhone
Friday, November 6, 2009
Surgery stitches removed, throat update...

Family and Friends,
Bob went by himself to the ENT surgeon this morning. He said that the doctor told him the wound was healing perfectly and his voice seems to be making progress. The stitches were removed. Time will tell if he needs further surgery or if his vocal cord will repair itself. After that he went to the oncologist. Bob has been getting Nupogen shots to bring up his white blood cell count this week. They are still low and so are his hemoglobin and platlets. I was very disappointed that his oncologist was not more proactive and would just give him 2 units of red blood cells and one unit of platlets. He's going to get to her office Monday morning and probably need 3 units of blood and 2 units of platlets and without being typed or crossed at the hospital he'll be at Bethesda ALL DAY and most likely all day Tuesday. I just don't get why doctors are reactive and not proactive. I'm in no way a doctor, but I can see the trend in Bob's bloodwork. How you could let anyone walk around with 50% of the blood in their body and not be proactive about it is beyond me. What if something happens to Bob over the weekend? I'm just saying...
It's annoying.
So, it looks like Bob doesn't qualify for unemployment benefits because he is unable to look for a job and from what the lady said Bob couldn't work at his last job so he technally wasn't laid off due to a lack of available work. Whatever. It's ridiculous. I'm just glad I got the long term disability straightened out. I'd recommend to anyone getting this insurance if it's available.
Please keep Bob in your thoughts and prayers. He only has ONE MORE ROUND OF CHEMOTHERAPY LEFT!!! (Thanksgiving week)
Lots of Love and Thanks,
Michele
Monday, November 2, 2009
Bob out of hospital, doing well after surgery
Family and Friends,
I hope everyone had a Happy Halloween. As I said in my last post, Bob's surgery went well. That Friday I really noticed a difference in Bob's voice. He was speaking much deeper and not whispering at all. But then Saturday (most likely due to the fact that the swelling went down) Bob was back speaking in a hoarse whisper. He is going back to the ENT surgeon Thursday or Friday this week to have the stitches removed and once it's healed they will begin vocal testing to see the extent of the damage to his vocal cords. I am hoping things will get better with time.
As expected, Bob got out of the hospital on Saturday afternoon. He was in good spirits and insisted that he walk out of the hospital rather than get wheeled out. (He was very stubborn about this). In addition, he also insisted that I get him a costume for Halloween so that he could trick or treat with Christopher, Bob's uncle Tom, and myself. I went out and bought us matching pirate costumes and Bob was a real trooper. He walked his butt off and let me tell you it was hot as heck. Like 85 degrees, so hot that we had to bring poor Christopher home to change out of his polyester costume and into a RedSox t-shirt and shorts. We all had a fanstastic time on Halloween. I will post photos later.
Bob and I went to his oncologist this morning so that he could get a check up and a Nupogen shot. His counts are actually pretty good today and he didn't need any blood. He'll be going back every day this week for more shots and follow up. I also got a call from the Leukemia and Lymphoma Society of Palm Beach wanting me to participate in their Woman of the Year. I have to call them back today. Bob's doctor was the one that nominated me and I was very honored that she'd think of me.
I will keep everyone posted of Bob's progress throughout the week. Please continue to keep him in your thoughts and prayers.
Love and thanks,
Michele
I hope everyone had a Happy Halloween. As I said in my last post, Bob's surgery went well. That Friday I really noticed a difference in Bob's voice. He was speaking much deeper and not whispering at all. But then Saturday (most likely due to the fact that the swelling went down) Bob was back speaking in a hoarse whisper. He is going back to the ENT surgeon Thursday or Friday this week to have the stitches removed and once it's healed they will begin vocal testing to see the extent of the damage to his vocal cords. I am hoping things will get better with time.
As expected, Bob got out of the hospital on Saturday afternoon. He was in good spirits and insisted that he walk out of the hospital rather than get wheeled out. (He was very stubborn about this). In addition, he also insisted that I get him a costume for Halloween so that he could trick or treat with Christopher, Bob's uncle Tom, and myself. I went out and bought us matching pirate costumes and Bob was a real trooper. He walked his butt off and let me tell you it was hot as heck. Like 85 degrees, so hot that we had to bring poor Christopher home to change out of his polyester costume and into a RedSox t-shirt and shorts. We all had a fanstastic time on Halloween. I will post photos later.
Bob and I went to his oncologist this morning so that he could get a check up and a Nupogen shot. His counts are actually pretty good today and he didn't need any blood. He'll be going back every day this week for more shots and follow up. I also got a call from the Leukemia and Lymphoma Society of Palm Beach wanting me to participate in their Woman of the Year. I have to call them back today. Bob's doctor was the one that nominated me and I was very honored that she'd think of me.
I will keep everyone posted of Bob's progress throughout the week. Please continue to keep him in your thoughts and prayers.
Love and thanks,
Michele
Friday, October 30, 2009
Bob's surgery a success
Family and friends,
Bob's surgeon just came out to see me and said everything went well. The hole in his trachea was covered by muscle and he has 5 stitches that will need to be removed next week. He also looked at Bobs vocal chord and said the left one is "bowed out". At this time there is nothing they can do about it but wait until the stitches heal. Overall a success. Bob is in recovery and I'm hoping his voice is better. Thanks to everyone for you support.
Please keep Bob in your thoughts and prayers. If recovery goes well he'll be out of here by noon tomorrow just in time to see Christopher dressed up for Halloween.
Love and thanks,
Michele

-- Posted from my iPhone
Bob's surgeon just came out to see me and said everything went well. The hole in his trachea was covered by muscle and he has 5 stitches that will need to be removed next week. He also looked at Bobs vocal chord and said the left one is "bowed out". At this time there is nothing they can do about it but wait until the stitches heal. Overall a success. Bob is in recovery and I'm hoping his voice is better. Thanks to everyone for you support.
Please keep Bob in your thoughts and prayers. If recovery goes well he'll be out of here by noon tomorrow just in time to see Christopher dressed up for Halloween.
Love and thanks,
Michele

-- Posted from my iPhone
Wednesday, October 28, 2009
Surgery scheduled for Friday...
Family and friends,
After calling the oncologist and explaining how it doesn't make sense for Bob to have a surgery scheduled for the same day that he is supposed to be discharged (Saturday), she spoke with the ENT and they have scheduled surgery for Friday - time TBD. I guess we'll take it and hope Bob recovers quickly before he is discharged. I also submitted the final paperwork for Bob's long term disaiblity claim. That was a nightmare. I am hoping finally that they will approve him and send him the last month's worth of checks. Other than that, everything is going pretty well with Bob. He is very tired, but spends his day watching NCIS, CSI Miami and playing on his iPhone. He wanted me to say hello to everyone for him.
Thanks to all who keep reading the blog. Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele
After calling the oncologist and explaining how it doesn't make sense for Bob to have a surgery scheduled for the same day that he is supposed to be discharged (Saturday), she spoke with the ENT and they have scheduled surgery for Friday - time TBD. I guess we'll take it and hope Bob recovers quickly before he is discharged. I also submitted the final paperwork for Bob's long term disaiblity claim. That was a nightmare. I am hoping finally that they will approve him and send him the last month's worth of checks. Other than that, everything is going pretty well with Bob. He is very tired, but spends his day watching NCIS, CSI Miami and playing on his iPhone. He wanted me to say hello to everyone for him.
Thanks to all who keep reading the blog. Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele
Tuesday, October 27, 2009
Bob saw ENT doc, going to have surgery...
Family and Friends,Thanks so much for all the encouraging words to myself and Bob regarding his neck and speech. I really think it did the trick because when I woke up this morning I got a text from Bob saying that the ENT doctor came by and Bob let him put the scope partially down his throat. I was very proud of him. Now for the not so good news. There is still a hole where Bob's tracheotomy site is and the doctor wants to close it. It would involve placing a flap of muscle over the hole in the trachea and sewing the skin together above that. Bob would not be fully knocked out, but in twilight. The doctor would then put the scope down Bob's nose and see what else is wrong. The doctor said Bob's left vocal cord is not fully functioning. The ENT doc is going to consult with Bob's oncologist to see about a timeline for surgery, but it sounded like he wanted to do it on Halloween morning (Saturday). Now I spoke with Bob's doctor last night and she said that if he had surgery she'd preferably like to do it as soon as possible because of the chemotherapy and the fact that all his blood counts go down exponentially day by day as well as his immune system and his ability to clot. Since I had to go to work today I told Bob to tell the oncologist that he wants to see if they can do the surgery tomorrow. Bob's response was "The doctors know best". I started laughing!!
So needless to say, I'm going to call the oncologist today and see what we can do about pushing this surgery up. It doesn't make any sense to do it on Saturday, the day he's supposed to be discharged. If they did it today, at least they could observe him for a few days - one would thing that would be the most logical thing. But as I have learned over the past few months, there is no rhyme or reason to the doctor's decisions.
I am still fighting with Bob's insurance company trying to get him long term disability. They won't release any checks yet. I did however get him unemployment. Did you know the max unemployment in the state of Florida is $275 a week? what the heck can you buy for that?? It's ridiculous. I've got to get this crap straightened out ASAP.
Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele
Monday, October 26, 2009
Bob back in hospital...
Family and friends,
Bob is back in the hospital for his second to last round of chemotherapy. He's in good spirits (as you can see from the photo), but still very tired all the time. He's going into this round with high counts which is good, but still having issues with the tracheostomy site not healing. I actually think it's infected again. But... Bob is stubborn and does not want the ear nose and throat doc to look at it with a scope unless they knock him out. The doctor won't do that because of the chemo, so everyone is stuck looking at the wound from the outside only. I'm just hoping there is no permanent damage to his vocal chords. He's still speaking at a whisper and no one can understand him on the phone. That's about it. I'll be hopefully giving regular updates this week since he'll be in there until Saturday.
Please keep Bob in your thoughts and prayers.
Love and thanks,
Michele

Bob with hair? Not...
-- Posted from my iPhone
Bob is back in the hospital for his second to last round of chemotherapy. He's in good spirits (as you can see from the photo), but still very tired all the time. He's going into this round with high counts which is good, but still having issues with the tracheostomy site not healing. I actually think it's infected again. But... Bob is stubborn and does not want the ear nose and throat doc to look at it with a scope unless they knock him out. The doctor won't do that because of the chemo, so everyone is stuck looking at the wound from the outside only. I'm just hoping there is no permanent damage to his vocal chords. He's still speaking at a whisper and no one can understand him on the phone. That's about it. I'll be hopefully giving regular updates this week since he'll be in there until Saturday.
Please keep Bob in your thoughts and prayers.
Love and thanks,
Michele

Bob with hair? Not...
-- Posted from my iPhone
Tuesday, October 20, 2009
Bob doing well, going back in for next round on Monday...
Family and Friends, Sorry it's been 10 days since my last post. Things here have been hectic but good. The good news first - Bob has been doing fantastic on his blood counts - White blood and platlets are back in normal ranges and his hemoglobin is at 9.6 which is pretty high for him. Bob has been very tired and spends most days sleeping on the couch. We are working with his doctor on tweaking his pain medication which causes him to twitch -especially at night when he gets tired. They are trying to wean him off the pain patches first. Bob is still having issues with his tracheotomy site. At one point it looked like it was getting better, then we decided it would be a good idea put neosporin on it, and now it's getting worse. While Bob is in the hospital next Monday for his next round of chemo, they are going to have the surgeon look at it. I don't know how well that's going to go seeing as Bob won't let them look up his nose to get to his throat, but we'll see.
I'm still fighting for Bob to get long term disability. They have approved it finally after a month, but won't disperse until I get a letter from one of his doctors from 2008 stating he was receiving muscle relaxers for his back pain and not for cancer. It's just ridiculous. In addition, I received a phone call last week from Bob's work advising me that they laid off Bob. THANK GOD my company offers domestic partner medical and dental benefits, or Bob would be screwed. Cobra wanted almost $600 a month for medical alone. In addition, Bob has racked up over $1,000,000 in medical costs (yep, that's a Million with a capital M!) It's pretty screwed up- the insurance company tells you that you have a $5k co-pay, but then once you've reached that then they tell you they'll only pay 90%. So Bob's portion of the medical bills for the last 4 months is $100,000 out of pocket. Nice. I think we're better off living in Canada or Switzerland or something, but Bob won't have any of that. Sorry for the complaining, but it gets very frustrating fighting with these companies. At least Bob has Aetna now. I'm hoping they are much better.
Please continue to keep Bob in your thoughts and prayers. He'll be in the hospital Monday October 26 and get out on Halloween afternoon - just in time to watch Christopher trick or treat!!
Love and thanks,
Michele
PS. I'll make sure to post some pictures of Bob soon.
Saturday, October 10, 2009
Bob hanging in there...
Family and friends,
Bob is hanging in there. He's been napping alot. His blood counts unfortunately have been dropping steadily to the point where his platelets were at 6,000. Normal is between 150,000 and 350,000. He went in as an outpatient yesterday for two units of platelets. He's keeping busy today watching football and wanted to say hi to everyone.
Please continue to keep him in your thoughts and prayers.
Love and thanks,
Michele
Ps. Thanks to Powerhouse Gym for the t-shirt and get well card. That was so thoughtful!

-- Posted from my iPhone
Bob is hanging in there. He's been napping alot. His blood counts unfortunately have been dropping steadily to the point where his platelets were at 6,000. Normal is between 150,000 and 350,000. He went in as an outpatient yesterday for two units of platelets. He's keeping busy today watching football and wanted to say hi to everyone.
Please continue to keep him in your thoughts and prayers.
Love and thanks,
Michele
Ps. Thanks to Powerhouse Gym for the t-shirt and get well card. That was so thoughtful!

-- Posted from my iPhone
Tuesday, October 6, 2009
Bob is home and happy

Family and friends,
Sorry its been a few days since ive updated the blog. Bob is home now and doing pretty well. He's been trying to sleep as much as possible. I'm going with him to the doctor tomorrow so they can show me how to flush his picc lines. His counts are doing surprising well so far too.
Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele
-- Posted from my iPhone
Friday, October 2, 2009
Chemo a success so far, Bob coming home tomorrow...
Family and Friends, Bob is holding his own very well with regard to the chemotherapy. His blood counts are holding steady and so are his platlets. The doctor said that Bob will be going home tomorrow. Bob is looking forward to eating real food (as opposed to hospital food) and getting to have Christopher come over to our house to play video games. The only issue that I'm dealing with now is fighting with Bob's insurance company Guardian to get him long term disability. They are making prove that Bob's Leukemia isn't a pre-exisiting condition (which is ridiculous).
Please keep Bob in your thoughts and prayers. As soon as he gets out tomorrow, I'm going to take a picture of him and post it so you can see his progress. He's been mainly living off snickers bars and whatchamacalits so he's putting on a few pounds since the hospital food isn't the greatest.
Love and thanks,
Michele
Tuesday, September 29, 2009
Day 1 of Round 3 chemotherapy finished
Family and Friends,Day 1 of Bob's chemotherapy is finished and I must say that Bob is in good spirits. His counts before chemotherapy started were higher than they had ever been, 335,000 for platelets and hemoglobin at 11, his white count was in normal range as well. Bob has had no fevers in the past week, but has suffered from a screwed up internal temperature system. He's got the thermostat set at 65, and yet he's sweating through all his clothing. The doctor said it could be a side effect from the chemo, but as long as he's not showing a temperature everything is okay. They tested him again last night for MRSA in his neck area. I'm assuming it's going to come back positive again. Other than that, Bob's in good spirits and the doctor said as long as things go well, they can get him out of the hospital as early as Saturday which would be great!
Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele
Sunday, September 27, 2009
Bob heading back for round 3 of 5
Family and friends,
Bob is doing pretty good. He was happy to see his friends Mike and Ed yesterday who came from NYC and Ft. Meyers to see him. We had lunch and Bob got to do some catching up. This morning we went back to the hospital for antibiotic infusions and then over to my parents for lunch. Now we are hanging out with Christopher and hanging Halloween decorations.
Please keep Bob in your thoughts and prayers as he heads back in to the hospital.
Love and thanks,
Michele
Ps Bob wanted me to say hi to everyone for him

-- Posted from my iPhone
Bob is doing pretty good. He was happy to see his friends Mike and Ed yesterday who came from NYC and Ft. Meyers to see him. We had lunch and Bob got to do some catching up. This morning we went back to the hospital for antibiotic infusions and then over to my parents for lunch. Now we are hanging out with Christopher and hanging Halloween decorations.
Please keep Bob in your thoughts and prayers as he heads back in to the hospital.
Love and thanks,
Michele
Ps Bob wanted me to say hi to everyone for him

-- Posted from my iPhone
Tuesday, September 22, 2009
Bob coming home today
Family and friends,They kept Bob an extra day yesterday because they wanted to load him up with blood, magnesium, and potassium IVs so he wouldn't have to get any more this week. They are saving his IV lines for the antibiotics for the MRSA. I changed the dressing on his tracheostomy site last night and it's still infected. I'm hoping once he gets home it will get better.
As most of you know I bought Bob a blackberry so that he could keep up with his emails while he was in the hospital. He didn't like the way the internet connection was (so he said, I think he was jealous that both Dave and I had iPhones) and now he wants one. So I bought him an iPhone today. He won't get it until I get off work, but I think he's going to be happy with it.
Please keep Bob in your thoughts and prayers. He goes back into the hospital on September 31 for the 2nd round of consolidation chemotherapy.
Love and thanks,
Michele
Michele
Sunday, September 20, 2009
Bob might be going home Monday!
Family and friends,
After a couple of days with no fever and increasing white cell counts (thanks to nuprogen injections) the oncologist said that as long as Bob would be willing to go home with a picc line and get IV antibiotics everyday for the MRSA they might let him go home tomorrow. Needless to say he was very happy to hear the news. Christopher stopped by to see him which made him happy too. Although Bob is tired he is in good spirits. Please continue to keep him in your prayers and thoughts.
Love and thanks,
Michele
-- Posted from my iPhone
After a couple of days with no fever and increasing white cell counts (thanks to nuprogen injections) the oncologist said that as long as Bob would be willing to go home with a picc line and get IV antibiotics everyday for the MRSA they might let him go home tomorrow. Needless to say he was very happy to hear the news. Christopher stopped by to see him which made him happy too. Although Bob is tired he is in good spirits. Please continue to keep him in your prayers and thoughts.
Love and thanks,
Michele
-- Posted from my iPhone
Saturday, September 19, 2009
Bob feeling better...
Family and friends
Happy to report that bob is feeling much better today. No nausea, vomiting, or fevers! Also the doctor decided to put Bob's blood on standby (genious idea) and when he needed blood yesterday, he got it in 15 minutes. It's funny how effective a squeeky wheel is!
Bob is much happier being back on dilaudid, rather than morphine. The doctor also said bob has MRSA in his neck and backside. They had him on vancomycin, but had to change it due to him having hearing issues. Bobs appetite is back, so I know he's getting better and he's checking his emails too.
Lots of love and thanks,
Michele

-- Posted from my iPhone
Happy to report that bob is feeling much better today. No nausea, vomiting, or fevers! Also the doctor decided to put Bob's blood on standby (genious idea) and when he needed blood yesterday, he got it in 15 minutes. It's funny how effective a squeeky wheel is!
Bob is much happier being back on dilaudid, rather than morphine. The doctor also said bob has MRSA in his neck and backside. They had him on vancomycin, but had to change it due to him having hearing issues. Bobs appetite is back, so I know he's getting better and he's checking his emails too.
Lots of love and thanks,
Michele

-- Posted from my iPhone
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