Thanks so much for all the encouraging words to myself and Bob regarding his neck and speech. I really think it did the trick because when I woke up this morning I got a text from Bob saying that the ENT doctor came by and Bob let him put the scope partially down his throat. I was very proud of him. Now for the not so good news. There is still a hole where Bob's tracheotomy site is and the doctor wants to close it. It would involve placing a flap of muscle over the hole in the trachea and sewing the skin together above that. Bob would not be fully knocked out, but in twilight. The doctor would then put the scope down Bob's nose and see what else is wrong. The doctor said Bob's left vocal cord is not fully functioning. The ENT doc is going to consult with Bob's oncologist to see about a timeline for surgery, but it sounded like he wanted to do it on Halloween morning (Saturday). Now I spoke with Bob's doctor last night and she said that if he had surgery she'd preferably like to do it as soon as possible because of the chemotherapy and the fact that all his blood counts go down exponentially day by day as well as his immune system and his ability to clot. Since I had to go to work today I told Bob to tell the oncologist that he wants to see if they can do the surgery tomorrow. Bob's response was "The doctors know best". I started laughing!!
So needless to say, I'm going to call the oncologist today and see what we can do about pushing this surgery up. It doesn't make any sense to do it on Saturday, the day he's supposed to be discharged. If they did it today, at least they could observe him for a few days - one would thing that would be the most logical thing. But as I have learned over the past few months, there is no rhyme or reason to the doctor's decisions.
I am still fighting with Bob's insurance company trying to get him long term disability. They won't release any checks yet. I did however get him unemployment. Did you know the max unemployment in the state of Florida is $275 a week? what the heck can you buy for that?? It's ridiculous. I've got to get this crap straightened out ASAP.
Please continue to keep Bob in your thoughts and prayers.
Love and thanks,
Michele
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