After days of fighting with U of Miami/Jackson about trying to find a bed at their hospital so that Bob can receive his chemotherapy that is 55 days overdue, they finally called this morning to tell me that they had a bed for him. Upon further investigation however, they decided that Bob was going to share a room. I reminded them that Bob needed chemo, that he would be neutropenic soon, and that he had MRSA. They basically told me "too bad" and said it's double room or nothing. In addition, I wouldn't be able to spend the night with him either. I asked about the special air mattress that Bob had been using because of his bed sore wound, and they blew me off on that too. After relaying this to Bob, he'd had about enough. He decided that he was going to stay at Bethesda. Although the doctors may not round 24/7, and they are not on the cutting edge of technology, they do know him as a person and treat him like he matters. Because he's been there for 2 months all the nurses know him, they have a vested interest in keeping him alive. They kept him alive the first time when his liver, kidneys and lungs shut down and he was bleeding internally. I'm satisfied that they can do it a second time with the lesser chemotherapy too. The only way we would transfer him is if he needed a transplant, and he's not at that stage right now.
I spoke with Bob's oncologist and they are starting the chemo today at 6pm. Please say a prayer or wish him luck.
Love and thanks,
Michele
Michele
Good luck through the Chemo process Bob ... keep being the fighter that you are and we'll see you soon..
ReplyDeleteBest wishes and prayers,
Jay and Team Mom Kathy.. haha
He's better off with everyone that knows his medical conditions and treats him like a human being! I think Bob made the right decision. We will keep saying prayers for you all!! Get better soon Bob! Nicky keeps asking when he'll get to see you, cuz he wants to show you his new helicopters!! LOL Keep fighting, we have faith that you'll get through this and anything else that may come your way!!
ReplyDeleteAll our prayers are with you,
Christy, Tim, Nicky and Uncle Rich & Aunt Rosie